Call for proposals for a pilot project on - Rare 2030 - a participatory foresight study for policy-making rare diseases.

Rare 2030 is a two-year project, led by a research team, but using inclusive methods to promote a focus on EU added value. A continuous bottom-up approach will be used so as to put more emphasis on interaction and to encourage a broad take-up by patients, stakeholders and society at large of approaches developed at EU level. The purpose of the pilot project is to propose sustainable policy scenarios in the field of rare diseases for the period 2020-2030 and to address challenges and opportunities up until 2030 in a comprehensive and innovative manner, with particular emphasis on limited